Hello! My name is Cassie and i would like to share my story with you. I’m sure many of you had the same experiences I did. I started to have numerous medical problems that doctors were not able to find the answers to.
My bones and joints were popping out continuously causing extreme pain. I had rapid heart rate and heart palpitations along with Mitral Valve Prolapse. I had chest pain, skin issues, Scoliosis, GI issues and urinary issues. My eye sight got worse and I had extreme fatigue.
Doctors were unable to find causes for these issues. Some went as far as saying “You don’t know what pain is” and “It’s all in your head”. I’ve been to a Cardiologist, Rheumatologist, Neurologist, Orthopedic, and Psychiatric doctor.
After over six years i was lucky enough to find a good Orthopedic doctor who referred us to a Genetic doctor. Amazingly, she put all the pieces together and was able to diagnose me with Ehlers – Danlos Syndrome (EDS).
But now, what do I do?
