Why the Zebra?
According to The Ehlers – Danlos Society those who have EDS identify themselves as zebras! There is a saying “When you hear hoof-beats behind you, don’t expect to see a zebra.” This is because they are taught to look for the more common diagnosis, not the unexpected. EDS is rare, so the medical profession does not look for it, especially in young people. That’s why it is usually under diagnosed or misdiagnosed.
Everyone with EDS has different symptoms, different types, and different experiences. We are all working together to hopefully one day find a solution!
