Well, I finally found a doctor who knew what EDS was! We went to a local clinic with one of the younger kids and i had put a packet together about EDS to share. As I was trying to share the information she acknowledged knowing what EDS was. Oddly enough, they thought she may have had it at one point. She was sent to Johns Hopkins in Maryland for evaluation. Luckily, she did not have it, but she was adamant that this was an outstanding hospital for evaluation. She was pleased with how friendly and caring they were. Way to go Johns Hopkins!!!!!
Look forward to new post soon!