♥ A Cause Worth Your Attention ♥

Hello everyone! Today I would like to talk about another Strong Zebra that needs our help!

Samantha Smith

Samantha Smith is a 30 year old single mother of two beautiful children. In December of last year, after years of pain and about 8 years of on going tests, misdiagnosis’s and ill health, Samantha was finally diagnosed with Ehlers Danlos Syndrome (EDS). She was strong and independent up until January 2017, that’s when her world flipped upside down. She said “started to lose consciousness regularly, vomit blood, experience extreme head pain, multi organ involvement, chest pain and weakness in my limbs.” In March of 2017 Samantha had gotten bad news.. She was told she had Crainocervical Instability (CCI).

In her words “CCI means that the ligaments in the neck are too stretched and weakened to support my head. This is causing the top of my spine to squash my brain stem under the weight of my skull. My spine is compressing my spinal cord. My cervical discs are damaged and prolapsing. I feel the relentless agony of it every minute of the day in addition to the nerve damage.”

Now she faces many obstacles, her EDS makes her resistant to local anesthetics and many analgesics making pain relief not work.

She is trying to enjoy her life as everyday is getting tougher and tougher. She said “it’s incredible how my children’s laughter can relieve the pain for a fleeting moment.”

In this harsh reality, If she doesn’t raise money to get this surgery here in the States  it will cause organ failure, paralysis and then it will take her life. Savannah tells how it feels from her POV “I am in constant pain in my neck, head and spine and week in, week out my neurological damage is becoming harder to ignore. My body goes into shock if I stand for more than a few minutes and I have tachycardia, tremors, and visual/hearing disturbances.”

There are no surgeons qualified to operate on an EDS patient in the UK.

Savannah – “myself and my family have spent the last 8 years fighting and funding private care to get the answers I needed. Now, I find myself in the powerless situation where I can no longer work, run a business or pay for the lifesaving surgery I so desperately need.”

She only has a little while to raise £150,000 for the operation here in the US. A US surgeon who has developed a method to successfully complete this treatment on an EDS patient has a 95% success rate!

Please help Samantha to reach her goal so she can get this life saving surgery and continue to care and provide for her children.

She is almost there! We can do this!


Samantha’s YouCaring fundraising for her surgery!  https://www.youcaring.com/samanthasmith-788861


Stay Beautiful!


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