Check it out!
Check it out!
Name : Cassie
What is your main diagnosis? : Ehlers – Danlos Syndrome (Type 3) (in process of more testing)
When did you get diagnosed? : I got diagnosed October 30, 2016
How long did it take them to diagnose you? : It took them 6-7 years
What is one thing that gets under your skin? : When doctors ask me to show them my EDS symptoms like I’m part of a circus.
Who knows about your illnesses? :My family and friends, but not sure if all realize how hard it truly is, I’m open to all questions they have.
What is your support system like? : My support system is absolutely amazing and i couldn’t thank them all enough. Love you guys! ♥
How old were you when you started noticing something was wrong? : I was probably 11-12 years old.
What was your feeling when you were diagnosed? : Relief. Relief that I finally had a diagnosis to my problems and it wasnt in my head like all the doctors said it was.
Who can you talk about everything going on with? : My mom
Why did you start a blog? : I created a blog so I could help others and share my EDS journey with everyone.
How do you feel since you got sick? : I feel like I miss out on a lot, wishing I could do more.
Last week I had an appointment with the Genetic doctor who previously diagnosed me in 2016 with Ehlers – Danlos Syndrome. Over the past couple months, I have developed more symptoms that really have me worried, not sure if it’s all part of my EDS or something else going on. As the appointment came around I grew more and more nervous as to what was going to be said.
The day of my appointment, my Mom and I met with the doctor and gave her a 3 paged list of my older symptoms and the ones I had developed recently. She read over the papers and asked me to get on the exam table, then looked over me thoroughly. First, she checked my eyes which were not dilating properly to the light. Secondly, she checked me from my neck down noticing my arms and legs on my right side was weaker than my left and noticed I had severe tremors in my arms and legs as well. The tremors can become like earthquakes shaking so violently and are completely uncontrollable.
She wanted me to see a Neurologist, get a MRI of my brain, and get multiple blood test done. The Neuro specialist can’t see me till March of 2019, so a couple of days ago i was able to see another Neuro doctor who is stumped by my symptoms and never seen anything like it, so he decided to get more blood testing done himself. I went and got my blood taken (10 tubes) and results should hopefully be here within the next two weeks because they had to send it away to get tested. I get my MRI at the end of the week and i am hoping and praying all turns out alright and it’s nothing too serious.
I will continue to update my blog as the weeks go on and my results come back! Thank you all for the suppot you have been giving me on this blog! Love you all!
♥ Immune Booster
♥ Goodbye Stress
♥ Immunity Boosting
♥ Headache Relief
♥ Pick Me Up
♥ Breathe Easy
♥ Common Cold Relieving
Looking for a good diffuser? Here are many different styles and prices!
Roll on to chest and shoulders before bedtime.
Roll onto chest and rub in.
Roll onto finger and gently dab on minor cut or abrasion.
♥ Seasonal Relief
♥ Immune System Support
♥ Joint Support
♥ Peaceful Sleep
♥ Tension – Filled Day
♥ Working Muscles
♥ Clear Brain
♥ Liquid Calm
♥ Tummy Tamer
-Roll on belly and massage
♥ Headache Support
-Roll on back of neck, shoulder, behind ears &/or forehead
♥ Memory Boost
Roll on back of neck and behind ears.
*All Recipes are based on 10 ml size bottles
Carrier Oils: Fractionated Coconut Oil, Olive Oil, Grapeseed Oil, Jojoba Oil, Almond Oil
-Stay Beautiful ♥
-Stay Beautiful! ♥
Here are some FREE printables I have made to help keep organized with important medical info!
♥ Cover page for a medical binder! ♥
♥ Vital information to keep handy! ♥
♥ Medical information ♥
♥ Your medical history ♥
If you all would like different designs feel free to message me! I hope this can help you like it helped me! Watch out for more chronic illness / medical organization post! Very helpful for my EDS binder!
-Stay Beautiul ♥