♥ EDS- Stretch Marks? :/ ♥

Hello everyone! I have had this problem for a while now, and i would like to share it with you all to help some of you who may be in the same situation.

When I hear the words “stretch marks” i usually think of what you would see on the belly of a pregnant women, or someone who has lost and/or gained a larger amount of weight.

I never knew I had stretch marks until i went to my Orthopedic doctor and he checked my spine. Days before I had a physical, but it was unnoticed because i was wearing a sports bra and it was covering it. It was a great shock considering i have never seen them and i was only 95 pounds at the time. They were deep and purple also itchy in the middle of my back but i thought nothing of it. At the time they had no clue as to why they were there. Here was my back.. the first ones we noticed.

IMAG0351

As a couple weeks past i kept checking to see if there were more. I noticed I had about 10-15 on each bum cheek but they were white and not too bad, so i wasn’t too worried, but kept an eye on them. I would use cocoa butter to try and help them fade and the itchiness.

About 3 months have past and I noticed I had more on my thighs, they are deep red. That’s when they got out of control, covering my thighs in deep red a purple stretch marks that looked like cuts all over my legs. The next day i discovered i had about 20 more stretch marks on my inner legs, they were kind of sore, so i continue to put cocoa butter all over my legs.

As I would look i got more and more every single day at least 5 smaller ones or so. They are now spreading down to my knees and calves and up the bottom of my back a bit. I continue to put on the cocoa butter to help sooth the soreness and itchiness and hope for them to fade.

Having stretch marks is one of my biggest insecurities, I hate showing my legs because of them. Most people my age doesn’t have them… especially like this. I usually wear jeans all year around or athletic pants. I’m currently trying out an essential cream specially for stretch marks. So keep an eye out! I’ll post updates as the cream hopefully works!

Thank you all for staying with me and liking my blog, as i was out for a little bit due to some more health issues and appointments. Lookout for those as well! I’m back and hopefully I will stay like this lol .

~Stay Beautiful! ♥

-Cassie

♥ Chronic Illness ♥ My Bucket List! ♥

  1.  I LOVE all animals and wildlife! here are some that are too amazing to pass up!7c6733a327b397edb1e7e2173945411f    6bb57e5038e89cb10d2c9afd44904897    333a750e366a257c165d0e60c527673e     cdb504070995fc87e1ff1694e469b99a  66ef5aaa84ff35e5f80c8f3be052a917    ec422f8e3152db1995297239b91d95c9

 

2. I love trying new things and being outside when I can!

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3. I also really love the water, something about it takes away some of my pain.

8001e85fa6d970b07e5e06f30173e3ec    f3c3e30117ef3bb54fdec03ca275ecb6   53ef929c18247b50f4de32823c8a2f4f

3. I would LOVE to travel and help people from all over!!

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Those are somethings that are on my bucket list!! With having a chronic illness I want an even bigger challenge doing things iv been told I may not be able to do.

-Stay beautiful!

Cassie ♥

♥ Chronic Illness – What Kids Would Like To Carry!♥

I recently did a couple for adults but what about the kids?! Here is some fun and cute items that will make them happy and their trips easier!!

 ♥ Chronic Illness – What Kids Would Like To Carry!♥

*Links are down below*

A Bag!

I know from working with little kids and my siblings that they love to be like the older kids! Get them a small backpack to carry the following or other items in the bag!

panda    bunny1monster2 boysback

Coloring Books!

This will keep them busy and preoccupied in the car, doctors offices and more! Especially if you have to travel long distance.

coloring   dinobook   puppy  grumpy

 

Something soft and cuddly!

It’s always comforting to have something you can hold and snuggle like a piece of home.

bear   ele  fox set

Movies/Music Accessories

It can help comfort them and calm them down. Music is very good!

jbciuwbi    monkey    bears

 

 

Panda Bag: http://fashionkawaii.storenvy.com/products/8480184-fashion-cartoon-cute-panda-bag

Bunny Bag: http://fashionkawaii.storenvy.com/products/13376151-japanese-kawaii-lolita-bunny-backpack

Monster Bag: http://fashionkawaii.storenvy.com/products/12861406-students-cute-cartoon-monster-dinosaur-backpack

Personalized Bag: http://www.personalizationmall.com/Backpacks-c73.lp?fitemid=51808&did=310913&wordid=51808&utm_source=GoogleBase&utm_medium=cpc&gclid=EAIaIQobChMIg7bKkOmD1QIVTEsNCh1u0ATrEAkYGyABEgIhcvD_BwE

Coloring Book 1: https://www.amazon.com/Chibi-Animals-Coloring-Adorable-Delightful/dp/1544102054/ref=sr_1_44?ie=UTF8&qid=1499865584&sr=8-44&keywords=coloring+cute+coloring+book

Coloring Book 2: https://www.amazon.com/Dinosaur-Coloring-Book-Jumbo-Children/dp/1545244294/ref=sr_1_93?ie=UTF8&qid=1499866041&sr=8-93&keywords=coloring+cute+coloring+book

Coloring Book 3: https://www.amazon.com/Puppy-Coloring-Book-Speedy-Publishing/dp/168185581X/ref=sr_1_33?ie=UTF8&qid=1499870222&sr=8-33-spons&keywords=cute+coloring+book&psc=1

Coloring Book 4: https://www.amazon.com/Grumpy-Coloring-Dover-Books-Children/dp/0486791637/ref=sr_1_126?ie=UTF8&qid=1499870714&sr=8-126&keywords=cute+coloring+book

Bear plush and blanket set: https://www.amazon.com/Zuwit-Travel-Blanket-Pillow-Cushion/dp/B00FOK4FS4/ref=sr_1_1?ie=UTF8&qid=1499873969&sr=8-1&keywords=bear+and+pillow+hand+warmer

Lamb Pillow Set: https://www.amazon.com/Silver-Sherpa-Stuffed-Blanket-Children/dp/B01MYDNEQ9/ref=sr_1_4?ie=UTF8&qid=1499873543&sr=8-4&keywords=animal+and+blanket+set

Fox Blanket and plush set: https://www.amazon.com/Hudson-Baby-Plush-Blanket-Toy/dp/B06Y4GBYJ8/ref=sr_1_2_a_it?ie=UTF8&qid=1499874075&sr=8-2&keywords=little%2Bboy%2Bblanket%2Band%2Btoy&th=1

Flush headband: https://www.amazon.com/Kids-Headphones-Adjustable-Headband-Children/dp/B01LZ2WK9L/ref=sr_1_46?ie=UTF8&qid=1499874290&sr=8-46&keywords=children+car+accessories

Monkey Headphones: https://www.amazon.com/ReTrak-ETAUDFMNKY-Tangle-Free-Limiting-Headphones/dp/B00F7295BG/ref=sr_1_12?ie=UTF8&qid=1499874621&sr=8-12&keywords=kids+animal+headphones

 https://www.amazon.com/Califone-2810-BE-Listening-Headphone-Compatible/dp/B000MUXVZE/ref=sr_1_5?ie=UTF8&qid=1499880854&sr=8-5&keywords=kids+animal+headphones

Just thought to include the younger ones! I hope you enjoy these cute ideas!!

Stay Beautiful!

-Cassie

♥ Things everybody with chronic illness should have ♥

♥ What everyone with chronic illness should have! ♥

Links are at the bottom of the page!

Zebra plush!!

I love looking at zebras! It reminds me so much of the EDS/chronic illness community which I love and appreciate! We are zebra strong!!

zebraplush
#1
zebra333
#2
zebra101
#3

A Zebra notebook!

I always write my blog post down into a tablet to remember and to get ideas flowing. It sticks out enough i can just grab it and go, it’s also a good journal! I write a lot of questions for my doctors in it as well! I know you could use a regular notebook or journal but… these are cute !!

 

journal      zebraboook         znote

Inspiration and courage!

You all can do this!!! Were Zebra strong!

68c481b8514a1481ac79722e2f6e8e70  dd90c3db1d3fd793fbf417875f1055a5   a601e75d50ea99ab10ec17f23beb4f4c

Relaxation time!

Just sit back relax and give your self a little break from everything and get comfortable. Enjoy your self, put on a mask and make it fun! Like this Zebra cool pack, it can help for many things; Swollen eyes, Waking up, and even take the ice pack out and have a little nap! Zzzzz

mask       facemask   zebra

 

 

 

 

Plush Zebra 1: https://www.amazon.com/Aurora-World-Precious-Moments-Embroidered/dp/B01N134T7I/ref=sr_1_4?ie=UTF8&qid=1499796206&sr=8-4&keywords=zebra+plush

Plush Zebra 2: https://www.amazon.com/Aurora-Zany-Zebra-Flopsie-Plush/dp/B004JRO59M/ref=sr_1_3?ie=UTF8&qid=1499796206&sr=8-3&keywords=zebra+plush

Plush Zebra 3: https://www.amazon.com/Gund-Zeebs-Zebra-Stuffed-Animal/dp/B00YZ76FT4/ref=sr_1_8_a_it?ie=UTF8&qid=1499796206&sr=8-8&keywords=zebra+plush

Zebra notebook 1: https://www.amazon.com/Zebra-Journal-Diary-Notebook-Pauper/dp/144132030X/ref=sr_1_1?ie=UTF8&qid=1499798714&sr=8-1&keywords=zebra+notebook

Zebra notebook 2: https://www.amazon.com/Zebra-Notebook-Purple-Print-8-5/dp/1535208007/ref=sr_1_5?ie=UTF8&qid=1499799138&sr=8-5&keywords=zebra+notebook

Zebra notebook 3: https://www.amazon.com/dp/1548193070/ref=sr_1_27?ie=UTF8&qid=1499799286&sr=8-27&keywords=zebra+notebook

Zebra face cool eye mask: https://www.amazon.com/Maison-Maxx-Sleeping-Eyeshade-Meditation/dp/B01KPXWF4K/ref=sr_1_5_a_it?ie=UTF8&qid=1499801144&sr=8-5&keywords=zebra%2Bsleep%2Bmask&th=1

Zebra facial mask: https://www.thecremeshop.com/products/white-pearl-face-mask-zebra-value-pack

Zebra headband: https://www.walmart.com/ip/Spa-Sister-Ultra-Dry-Microfiber-Headband-Zebra/725324542?wmlspartner=wlpa&selectedSellerId=0&adid=22222222227069027086&wmlspartner=wmtlabs&wl0=&wl1=g&wl2=c&wl3=175390270000&wl4=pla-281824369421&wl5=9006614&wl6=&wl7=&wl8=&wl9=pla&wl10=8175035&wl11=online&wl12=725324542&wl13=&veh=sem

Stay Beautiful!

-Cassie

♥ Chronic Illness – How to make a car ride more comfortable! ♥

♥ How to make a car ride more comfortable! ♥

( Links will be at the bottom of the page)

Back support!

I never realized how important back support in the car is for us with back problems. My back is always achy and full of pain, this back support fits to my back in all the right places! They have multiple different kinds but i’m using this “lumbar back support” Prices range on where you look. The ones on Walmart website is half the price of Amazons But Amazon has more choices. It just depends on what you would be comfortable with and what would help!

Go Lumbar Support for Car | Super Soft Comfortable Easy Posture Solution for Back Pain n Poor Posture | Properly Aligns Spine to Ease Lower Back Pain | Cool Breathable Mesh Mostly Fit Any Cars | 533.4

Head and Neck support!

On long road trips I always seem to fall asleep. Because of all my joints i just can’t get comfortable or wake up regretting laying in that position! By using this it will keep your neck more stable and comfortable! I personally believe one like below would be the best, or even with micro-beads! Sometimes the filling on others can be uncomfortable and hard. You can find these many places! Just giving you an idea!

 

neckpillow
Compact Neck Pillow For Travel – Amazon.com

 

neckpillow2
Micro-bead shaped U neck pillow! – Amazon.com

Blanket!

On long car rides in the passenger seat or in the back I like covering myself with a blanket. It keeps me warm, relaxes, and comforts me! Just a tiny fleece or flannel throw blanket for those times when you need it, can come in handy for many things! Also! Us with chronic illness a lot of times our body temperature fluctuates from hot to cold! There is never a in between (lol). I personally would look on Amazon.com they have many different choices for good prices! They make ones for all ages!! (Hint) Possible DIY coming soon! Keep an eye out!! 🙂

fleece  fleece2  fleece 3

Plush!

Everyone loves push toys! Especially the younger ones! It’s always good for them to connect with something that they can carry around and take with them! A little bit of home in a soft plush and the bear pillow has hand warmers!

animl 4  pic 5   plush 5

 

Links

 

Back support: https://www.amazon.com/Go-Lumbar-Support-Comfortable-Breathable/dp/B01N6S4KBP/ref=sr_1_1?ie=UTF8&qid=1499793420&sr=8-1-spons&keywords=car+back+support&psc=1

Neck support 1: https://www.amazon.com/Compact-Headrest-Comfortable-Breathable-Suitable/dp/B06X9T8JZ4/ref=sr_1_55?ie=UTF8&qid=1499793545&sr=8-55&keywords=compact+travel+pillow

Neck support 2: https://www.amazon.com/Fashion-Bedroom-Airplane-Multi-Color-Beautiful/dp/B0731KW5VP/ref=sr_1_34?ie=UTF8&qid=1499793913&sr=8-34&keywords=microbead+shaped+u+pillow

2 in 1 plush Hamster : https://www.amazon.com/KOSBON-Hamster-Stuffed-Animal-Blanket/dp/B06XFQ9RV3/ref=sr_1_3?ie=UTF8&qid=1499793182&sr=8-3&keywords=cute+throw+blanket

Elephant throw blanket: https://www.amazon.com/COSMOZ-Dreaming-Elephant-Background-Lightweight/dp/B01JUITWRO/ref=sr_1_8?ie=UTF8&qid=1499793319&sr=8-8&keywords=cute+throw+blanket

Zebra throw blanket: https://www.amazon.com/Flannel-Zebra-Print-Blanket-x60/dp/B016QMIEHG/ref=sr_1_7?ie=UTF8&qid=1499793360&sr=8-7&keywords=zebra+throw+blanket

Plush Penguin: https://www.amazon.com/PomPom-Penguin-Plush-Brown-Aurora/dp/B00LYSVQ5K/ref=sr_1_46?ie=UTF8&qid=1499795229&sr=8-46&keywords=cute+plush

Bear Plush: https://www.amazon.com/Plush-Toy-Stuffed-Animal-Cushion/dp/B013D4ZDFQ/ref=sr_1_76?ie=UTF8&qid=1499795042&sr=8-76&keywords=cute%2Bplush&th=1

Plush turtle: https://www.amazon.com/Vintoys-Turtle-Plush-Stuffed-Animals/dp/B01M4RYJNK/ref=sr_1_119?ie=UTF8&qid=1499795361&sr=8-119&keywords=cute+plush

Stay Beautiful!

-Cassie

♥ A Cause Worth Your Attention ♥

Hello everyone! Today I would like to talk about another Strong Zebra that needs our help!

Samantha Smith

Samantha Smith is a 30 year old single mother of two beautiful children. In December of last year, after years of pain and about 8 years of on going tests, misdiagnosis’s and ill health, Samantha was finally diagnosed with Ehlers Danlos Syndrome (EDS). She was strong and independent up until January 2017, that’s when her world flipped upside down. She said “started to lose consciousness regularly, vomit blood, experience extreme head pain, multi organ involvement, chest pain and weakness in my limbs.” In March of 2017 Samantha had gotten bad news.. She was told she had Crainocervical Instability (CCI).

In her words “CCI means that the ligaments in the neck are too stretched and weakened to support my head. This is causing the top of my spine to squash my brain stem under the weight of my skull. My spine is compressing my spinal cord. My cervical discs are damaged and prolapsing. I feel the relentless agony of it every minute of the day in addition to the nerve damage.”

Now she faces many obstacles, her EDS makes her resistant to local anesthetics and many analgesics making pain relief not work.

She is trying to enjoy her life as everyday is getting tougher and tougher. She said “it’s incredible how my children’s laughter can relieve the pain for a fleeting moment.”

In this harsh reality, If she doesn’t raise money to get this surgery here in the States  it will cause organ failure, paralysis and then it will take her life. Savannah tells how it feels from her POV “I am in constant pain in my neck, head and spine and week in, week out my neurological damage is becoming harder to ignore. My body goes into shock if I stand for more than a few minutes and I have tachycardia, tremors, and visual/hearing disturbances.”

There are no surgeons qualified to operate on an EDS patient in the UK.

Savannah – “myself and my family have spent the last 8 years fighting and funding private care to get the answers I needed. Now, I find myself in the powerless situation where I can no longer work, run a business or pay for the lifesaving surgery I so desperately need.”

She only has a little while to raise £150,000 for the operation here in the US. A US surgeon who has developed a method to successfully complete this treatment on an EDS patient has a 95% success rate!

Please help Samantha to reach her goal so she can get this life saving surgery and continue to care and provide for her children.

She is almost there! We can do this!

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Samantha’s YouCaring fundraising for her surgery!  https://www.youcaring.com/samanthasmith-788861

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Stay Beautiful!

-Cassie

♥ Annabelle’s ♔ Challenge ♔ Charity ♥

♔ Annabelle’s Challenge Charity ♔

Hello everyone! Today I want to talk about something more serious. For my next couple posts i’m going to talk about people who are having great difficulties with EDS and could use some help!

As I was searching the internet trying to find out more about my illness I came across many wonderful and brave people going through tough times, one of them being Annabelle!

Annabelle has Vascular Ehlers- Danlos Syndrome (EDS). She was diagnosed at the young age of three after a series of three months in-depth testing.

Vascular EDS is one of the most serious of the illnesses, It weakens her collagen and puts her at risk for arterial or organ rupture. If she were to tear an artery she would face bigger obstacles such as – internal bleeding, stroke, shock, and in the seriousness of this disease, death. Vascular EDS is the leading cause of death within this serious illness.

Even going through such a serious problem, Annabelle and her family started a charity to help those With EDS vascular disorders! I’s amazing to see people coming together from all over the world to help and support one another.  If you want to know more abut Annabelle and her charity links are below! If we can come together and assist them to spread awareness that would be awesome!

Annabelle’s Website! – https://www.annabelleschallenge.org/

Annabelle’s Facebook! –  https://www.facebook.com/AnnabellesChallenge/

Feel free to donate and visit their shop on their website to help an amazing cause!

Click around their website to learn more about their amazing charity and to find out more about Annabelle!

 

-Stay Beautiful!

-Cassie

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*I do NOT own the images or links above*