♥ Health Updates (EDS) (October 2018)

Hello everyone! Here is a little update about my health this month! Feel free to ask questions!

October 7th, 2018

(My neck and back)

For the past month or so I have been having horrible pain in my neck and back, I do have scoliosis so I figured the pain was just acting up. As weeks go on it’s been hurting much more, it’s hard to bend down, stand up, move my neck from side to side or up and down. Its concerning because of my EDS so, we got an appointment to be safe and make sure nothing was happening to my neck and spine that we weren’t aware of.

October 8th, 2018

(My neck and back)

~Spinal surgeon~

I visited the Orthopaedic Spinal surgeon to make sure nothing too serious was going on. They took X-rays of my neck at different angles and really checked it over. Luckily the X-rays of my neck came back normal! The doctor requested that i do physical therapy, start a new medication and, if the pain continues to get another spinal MRI and wants me checked again by a scoliosis specialist.

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October 16th, 2018

(Tremors and Spasticity)

~Neurologist~

My Genetic doctor refered me to the Neurologist to be checked and evaluated. Still having severe tremors and “Spasticity” all over my body (Head to toe), but the worst of it is in my lower extremities and I’m having weakness in my legs.  Myoclonus, Spasticity, and Brisk deep tendon reflexes is what he described it as. When he was examining me my legs went CRAZY, looked like I was having a severe convulsions in both of my legs. I had no control over them and couldn’t get them to stop, not to mention i almost kicked the doctor when it happened (Whoops). When this happens it does upset me because I have no clue as to what is happening to me.

At the end of the appointment he put me on a medication to try to help, he also made the decision to test me for “Hereditary spastic paraplegia” (HSP). We are waiting to see my genetic doctor later in the week to gather test she would like done as well.

It affects individuals from diverse ethnic groups with a prevalence ranging from 1 to 10/100,000

Want to know more about HSP?  “Hereditary spastic paraplegia

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October 22, 2018

(Genetics)

Went to my Genetic doctor for further information and to get her opinion on the testing that the Neurologist requested. Together they agreed to do this Hereditary spastic paraplegia testing panel which includes sequencing and deletion/ duplication analysis of 80 genes associated with HSP.

If this comes back normal, they will likely recommend whole exome sequencing. We will contact my insurance(s) to determine if this testing would be covered.

She talked over it with us and explained what it was and how it works. I will make a post more about it soon!

I will continue to update you all as I get more information!

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Thank you all for sticking by me and all the support! I love you all!

~Stay Beautiful

-Cassie

More Testing…. (EDS)

On the 26th of July is the day I had to get an MRI of my brain and I’m completely terrified.

In a previous post ♥ EDS – Health Update.. :/ I mentioned that I went to the genetic doctor where we ruled out that my right side was weaker than my left. My eyes aren’t dilating normal and I have severe tremors among other things. There is a chance that this could have nothing to do with my EDS but another problem.

I’m not terrified by the blood, needles, machines and what comes with the tests themselves, but what the tests may show. It worries me greatly especially because well…it’s my brain It controls my everyday life, and with that comes the whys and what if’s.

  • “What if something is there?”
  • “Can it be helped?”
  • “Will it leave permanent damage?”
  • “Why would I now just be showing symptoms related to the problem?”
  • “Why must I go through all of this at such a young age?”

Constantly going through my head thinking and preparing for the worst. Each awaiting day gets tougher and tougher, the days seem to drag on forever waiting for results of more test. It’s like walking into a dark room, you don’t know when or whats going to pop out, it’s the unknown.

 

 

 

Stay Beautiful! ♥

-Cassie

♥ EDS – Chronic Illness Tag! ♥

Name : Cassie

What is your main diagnosis? : Ehlers – Danlos Syndrome (Type 3) (in process of more testing)

When did you get diagnosed? : I got diagnosed October 30, 2016

How long did it take them to diagnose you? : It took them 6-7 years

What is one thing that gets under your skin? : When doctors ask me to show them my EDS symptoms like I’m part of a circus.

Who knows about your illnesses? :My family and friends, but not sure if all realize how hard it truly is, I’m open to all questions they have.

What is your support system like? : My support system is absolutely amazing and i couldn’t thank them all enough. Love you guys! ♥

How old were you when you started noticing something was wrong? : I was probably 11-12 years old.

What was your feeling when you were diagnosed? : Relief. Relief that I finally had a diagnosis to my problems and it wasnt in my head like all the doctors said it was.

Who can you talk about everything going on with? : My mom

Why did you start a blog? : I created a blog so I could help others and share my EDS journey with everyone.

How do you feel since you got sick? : I feel like I miss out on a lot, wishing I could do more.

 

Stay Beautiful!

-Cassie

♥ EDS – Health Update.. :/ ♥

Last week I had an appointment with the Genetic doctor who previously diagnosed me in 2016 with Ehlers – Danlos Syndrome. Over the past couple months, I have developed more symptoms that really have me worried, not sure if it’s all part of my EDS or something else going on. As the appointment came around I grew more and more nervous as to what was going to be said.

The day of my appointment, my Mom and I met with the doctor and gave her a 3 paged list of my older symptoms and the ones I had developed recently. She read over the papers and asked me to get on the exam table, then looked over me thoroughly. First, she checked my eyes which were not dilating properly to the light. Secondly, she checked me from my neck down noticing my arms and  legs on my right side was weaker than my left and noticed I had severe tremors in my arms and legs as well. The tremors can become like earthquakes shaking so violently and are completely uncontrollable.

She wanted me to see a Neurologist, get a MRI of my brain, and get multiple blood test done. The Neuro specialist can’t see me till March of 2019, so a couple of days ago i was able to see another Neuro doctor who is stumped by my symptoms and never seen anything like it, so he decided to get more blood testing done himself. I went and got my blood taken (10 tubes) and results should hopefully be here within the next two weeks because they had to send it away to get tested. I get my MRI at the end of the week and i am hoping and praying all turns out alright and it’s nothing too serious.

I will continue to update my blog as the weeks go on and my results come back! Thank you all for the suppot you have been giving me on this blog! Love you all!

Stay Beautiful!

Cassie ♥

 

♥ EDS and Chronic Illness Essential Oil Diffuser Recipes ♥

Immune Booster

  • 1 drop rosemary essential oil
  • 1 drop clove essential oil
  • 1 drop eucalyptus essential oil
  • 1 drop cinnamon bark essential oil
  • 1 drop wild orange essential oil

Goodbye Stress

  • 2 drops frankincense essential oil
  • 2 drops bergamot essential oil

Immunity Boosting

  • 2 drops Clove bud
  • 2 drops Lemon
  • 1 drop Cinnamon bark
  • 1 drop Eucalytpus Globulus
  • 1 drop Rosemary

Headache Relief

  • 2 drops Peppermint
  • 2 drops Lavender
  • 1 drop Eucalytpus Globulus
  • 1 drop Rosemary

Pick Me Up

  • 3 drops Peppermint
  • 3 drops Orange

Breathe Easy

  • 3 drops eucalyptus
  • 3 drops peppermint
  • 3 drops rosemary

Common Cold Relieving

  • 5 drops rosemary
  • 4 drops eucalyptus
  • 4 drops peppermint
  • 3 drops cypress
  • 2 drops lemon

 

Looking for a good diffuser? Here are many different styles and prices!

Oil Diffuser

About Essential Oils

Stay Beautiful!

-Cassie ♥

♥ EDS and Chronic Illness Essential Oil Roller Ball Recipes ♥ ( Kids Version )

Sleep Tight

  • 1 drop Lavender
  • 1 drop Cedarwood

Roll on to chest and shoulders before bedtime.

Happy Lungs

  • 1 drop Cardamom
  • 1 drop Frankincense

Roll onto chest and rub in.

Owie Blend

  • 1 drop Lavender
  • 1 drop Frankincense

Roll onto finger and gently dab on minor cut or abrasion.

Stay Beautiful!

-Cassie

♥ EDS and Chronic Illness Essential Oil Roller Ball Recipes ♥ (Adults Version)

Seasonal Relief

  • 3 drops Peppermint
  • 3 drops Lemon
  • 3 drops Lavender

Relax

  • 4 drops Orange
  • 4 drops Stress Away
  • Carrier Oil

Immune System Support

  • 2 drops Lemon
  • 2 drops Thieves
  • 2 drops Tea Tree
  • 2 drops Oregano
  • 2 drops Frankincense
  • Carrier Oil

Joint Support

  • 4 drops Panaway
  • 4 drops Copaiba
  • Carrier Oil

Peaceful Sleep

  • 4 drops Stress Away
  • 4 drops Lavender
  • Carrier Oil

Tension – Filled Day

  • 3 drops Frankincense
  • 3 drops Peppermint
  • 3 drops Lacender
  • Carrier Oil

Silence

  • 4 drops Orange
  • 4 drops Cedarwood
  • Carrier Oil

Motivation

  • 3 drops Black Pepper
  • 3 drops Lime
  • 2 drops Orange
  • 2 drops Frankincense
  • Carrier Oil

Working Muscles

  • 3 drops Peppermint
  • 3 drops Clove
  • 3 drops Wintergreen
  • 2 drops Black Pepper
  • Carrier Oil

Clear Brain

  • 3 drops Rosemary
  • 4 drops Lemon
  • 2 drops Cypress
  • Carrier Oil

Liquid Calm

  • 3 drops Lavender
  • 2 drops Valor
  • 2 drops Stress Away
  • 1 drop Patchouli
  • 1 drop Vetiver
  • Carrier Oil

Tummy Tamer

  • 4 drops Lavender
  • 3 drops Peppermint
  • 3 drops Ginger

-Roll on belly and massage

Headache Support

  • 4 drops Lavender
  • 4 drops Peppermint
  • 2 drops Frankincense

-Roll on back of neck, shoulder, behind ears &/or forehead

Memory Boost

  • 4 drops Lavender
  • 3 drops Lemon
  • 2 drops Rosemary
  • 1 drop Cinnamon

Roll on back of neck and behind ears.

 

Learn About Essential Oils! ♥ Guest Post ♥

 

*All Recipes are based on 10 ml size bottles

Carrier Oils: Fractionated Coconut Oil, Olive Oil, Grapeseed Oil, Jojoba Oil, Almond Oil

 

 

Stay Beautiful!

-Cassie

 

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-Stay Beautiful ♥

-Cassie