♥ My EDS/Chronic Illness Summer Essentials ♥

Hello everyone! I apologize for it being a little while since I last posted! I finally graduated so i can spend more time blogging/vlogging! Here are some of my EDS/Chronic illness summer essentials!

 

Sunglasses!

Sunglasses are a must for everyone! My eyes are super sensitive to light because of my keratoconus, but it’s also important to protect your eyes from the sun!

Sunscreen

Even if the sun isn’t out and shining bright, the UV rays can harm your skin more if left unprotected.

Aloe Vera

Even if i don’t get sun burn i apply this, because my skin gets really sensitive during the winter months and it helps the pain from the sensitivity.

Small Hand Held Misting Fan

A lot of times I get heat flashes and it makes me feel sick and dizzy so it’s always nice to have this handy for  nice quick cool down!

♥ Water Bottle and Pill Case

It’s always important to stay hydrated and keep up with your medications, but sometimes it can be hard to remember to take your pills throughout the day! This makes things easier to do both – stay hydrated and on schedule with your medications.

 

I hope these can help give some ideas on what may help you! Thank you all for the support and visiting my blog! Feel free to contact me and talk! I love you all so much!

 

Stay Beautiful

-Cassie

 

*NEW CONTACT!* Chronic Illness

 

♥ How I knew Something Was Wrong – EDS Diagnosis – Chronic Pain ♥

I was young…running and playing with my friends at school and having a good time like kids should but, towards the end of the school year I was having some knee pain.. Didn’t faze me too much since I figured it was from playing.

I loved to Dance! I took Jazz and Tap lessons every week for a year! As I continued Jazz my knees got worse, I didn’t think anything of  it thinking it was from working so hard, so i just wore a knee brace. As the classes went on it only got worse, so i made the decision to stop Jazz cause it hurt so much. I continued Tap still in a little pain but I continued on and had a dance recital! It as so much fun I was thinking of doing it again the following year… Little did I know what was happening until a couple of months later I started to go down hill and we didn’t know why..

Why was I in so much pain?

The pain and soreness moved around effecting my shoulders, hips, ankles, back etc. My stomach started hurting more than ever constantly having sharp pains.

I was at school the one day, and I had a bad episode of pains so I went to walk a bit in the hallway…. I started feeling weak and I couldn’t control anything, so I passed out going into the lockers leaving more pain and bruising. I remember snapping out of it and the teacher was carrying me to the nurses office, I had trouble speaking and comprehending what was happening. My Mom picked me up and took me straight to the doctors where they thought maybe I was just dehydrated.

The following days continued with me being light-headed and dizzy.

I went back to the doctors and that’s when it all became doctor after doctor after doctor. Being tired and confused I went to all the doctors who mostly told me they believed it and that it was all in my head and telling me I was faking it all. As years went on the symptoms got worse and so did most of the doctors. Finally I met two doctors who were starting to put pieces together and believed how i felt. Finally after 7 years of unknown pain I was diagnosed on October 30th 2016 with Ehlers-Danlos Syndrome (Hypermobile). I remember with a big smile I looked at my mom who also had the biggest smile, we couldn’t help the tears that came with it… tears of relief, finally having an answer.

Now living with Ehlers-Danlos Syndrome It took a lot away from me but, it didn’t take away me wanting to help others. I hope by me posting on here it can make someone else feel less alone, understand EDS more, meet others and share their stories. You are all very special no matter what! Never give up … Stay Strong! You got this!

 

Stay Beautiful! ♥

Many more to come!

-Cassie

♥ Share Your Stories! ♥

Hello Everyone!!!

I was checking through my blog and I’m absolutely amazed by where everyone is from! I can’t believe my blog has reached so far! I hope you all are doing well and hopefully my blog can/has help even the slightest bit! No matter what Country you’re from I’d love to hear your stories! If you would like to share your stories enter the tag edspaoutreach ! 

The following country’s have visited my blog!

 

United States

Canada

United Kingdom

Australia

India

China

Sweden

Netherlands

Turkey

Philippines

Algeria

Israel

Italy

Burkina Fasco

Puerto Rico

Syria

Belgium

Japan

Denmark

Chile

South Africa

Spain

Ukraine

Ecuador

Ireland

 

Thank you all so much!

Again, if you would like to share your stories do the tag edspaoutreach !

Stay Beautiful!

♥ Cassie

 

 

♥ Those Who Just Don’t Understand (Chronic Illness) ♥

Everyday we all go through this constant pain that keeps us limited and unable to a lot of things like those who don’t share our struggle. A lot of people say the physical pain can’t be too bad, but they cant see the excruciating pain that goes not only through our bodies, but heart and soul.

Every Single Day…

What are you doing after school?

Are you going to college?

Whats you dream job?

What does your future look like?

Those questions eat at me more than the physical pain.. All my dreams since is was a young child are gone.. Dance, College, work, family, etc… Taken away right in front of my eyes from an illness that left me sick throughout my teen years. No answers to what it was or why i was feeling this way, but it didn’t stop there.

After 7 years I was finally diagnosed with Ehlers-Danlos Syndrome. The questions kept coming..

You know you can’t manage that, right?

You will never accomplish that, why even try?

Why don’t you just give up?

Those are questions people ask that makes me want to break down and cry.

It pains me knowing I won’t ever be the same person living the dreams i planned on for so long.

But I won’t give up…I can’t give up.

The love and support from my family and friends keep me going! Wanting to make a difference  keeps me going. Together we can do this..

Thank you for visiting my blog!

Stay Beautiful

Cassie

♥ The Mighty ♥ Chronic Illness (EDS)

♥ The Mighty ♥

Hello everyone!! I apologize for the long wait! I wasn’t  feeling the best and was busy, but I’m back!!!

I’m going to be talking about a website that was very informative and helpful to my family and I! A lot may already know about it but for those who don’t I hope it can help in some way!!

♥ The Mighty website (Link Below) has many different categories that could hopefully help just about anyone!

  • Personal Feed
  • News
  • Parenting
  • Autism
  • Disability
  • Mental Health
  • Chronic Illness
  • Rare Disease
  • Cancer

The Mighty has helped my family and I so much! It informed us about my chronic illness more than any doctor around here could.

When I first got diagnosed, I felt like I was all alone and couldn’t relate to other people my age, Most of them just thought it was some type of joke. My mom then found the Mighty and showed me, I felt connected because a lot of them were feeling and going through what I was..I finally realized..I’m not alone in this fight. I have my families support through everything as well as the amazing people I have starting to talk to throughout my blog and the Mighty!

From reading and watching the Mighty i have learned to not be ashamed or embarrassed about having a chronic illness (EDS). Everyone is unique in their own way but that doesn’t make us any less beautiful!

Seeing so many stories i related to helped with the diagnosis, before i was confused and scared. It’s helped me open up more so I hope to share more often on here for you all!

Thinking of doing a QA any questions?!

Thank you all!

-Stay Beautiful

-Cassie

♥ Why? -Living with A Chronic Illness/EDS

“Why” is what I ask myself everyday…

♥ Why must I be this way?

♥ Why do I have to be in so much pain?

♥ Why is my life changing?

But, there is always one other thing that pops up in my head and that is “what”…

♥ What did I do to deserve all of this?

All of the depression and heart ache because my future will never be as i planned.

My dream job and starting a family of my own ripped away from me because of this horrible illness. The feeling of crying myself to sleep at night knowing that this is reality and there is no way to fix it or make it go away.

People could look at me from the outside and may think nothing is wrong, but on the inside I’m in so much pain and slowly breaking into pieces. It’s saddening to know that there are people out around who are going through the same thing.

Not being believed and respected is a big part of chronic illness, I’m sure everyone has had their share of similar words from their doctors. That is the most frustrating thing…Nobody know your body as much as you do, if you’re feeling pain then you’re feeling pain, nothing in between. If a Doctor doesn’t help, push for another Doctor and keep standing strong!

I have one more why..

♥ Why not use this to help others?

Yes, life can be so unfair at times but, we can’t let this stop us. We need to keep our heads held up high and remember the future is not over.  We can move forward and do something so great!

 

Thank you all for reading my blog post I really appreciate it! Love you all!

♥ Stay Beautiful

– Cassie

♥ I would love to thank my family for being so supportive! I love you! ♥

♥ A Letter To You!!

Hello everyone! Just a  letter to you!!

You are absolutely Beautiful! Don’t ever change the way you are for someone else. Don’t let people get to you and say rude things…You’re stronger than them! You’re a warrior, You have the powers to help others! We can do this! Remember..you are all loved and appreciated! I appreciate everyone who’s stuck by me through everything. I’m always here to help anyone who needs it!

Just wanted to let everyone know!

I love you ALL!!

-Stay beautiful!

Cassie

 

I’m Thankful For….

I know this is a bit late but I need people to know….I am so thankful for everything and everyone in  my life!

I am thankful for this blog…It’s helped me throughout the year more than you can imagine!

I am thankful for the people who takes a little time to look at my blog or send me a message!

I am thankful for all of the amazing and beautiful people who I have met through blogging!

I am thankful that i can help people out just like me..and educate others on Ehlers – Danlos Syndrome.

I am thankful for the friends that except me for who i am!

I am thankful for my amazing family who always supports me, loves me, and has my back. I love you guys sooooo much!

I am thankful for the doctors who stuck by me through the years and helped us get to this point. If it wasn’t for my family or doctors I don’t know even know where my health would be today.

I am thankful for my pets..they can make your day a tad bit easier!

I am blessed that I have you all! If you are ever having a hard time or questions olease message me! I would love to answer back!

-Stay Beautiful

Cassie